Former Little Mix singer Jesy Nelson shared sad news today. She posted an emotional video on Instagram. The video was about her eight-month-old twin daughters. Their names are Ocean Jade and Story Monroe.
Nelson revealed her babies have a rare genetic condition. It is called Spinal Muscular Atrophy Type 1, or SMA Type 1. This news comes months after the twins were born prematurely.
Who is Jesy Nelson?
Jesy Nelson is a famous English singer. She first became famous as a member of the girl group Little Mix. The group was formed on the TV show The X Factor in 2011.
Nelson left the group in 2020. She then started a career as a solo artist. She is engaged to partner Zion Foster. The couple welcomed their twin daughters on May 15, 2025.
What is SMA Type 1?
SMA Type 1 is a severe genetic muscle disease. It affects the nerve cells that control muscles. Over time, the muscles become weaker and waste away.
In her video, Nelson explained the condition. She said it kills the muscles in the body over time. Without timely treatment, life expectancy is very short. Many children do not live past two years old.
What did Jesy Nelson say in her video?
Nelson was very emotional in the Instagram video. She explained the twins’ difficult start. They were born early at 31 weeks. This was due to a pregnancy complication called TTTS (twin-to-twin transfusion syndrome).
She said her daughters showed little movement in their legs for months. After many doctor visits, they got the SMA Type 1 diagnosis.
“Doctors told us they will probably never walk,” Nelson said through tears. “They will likely never regain neck strength. They will be disabled.”
She also shared a message of hope. She said the best thing now is to get them treatment. She feels grateful they received this treatment in time.
“If they didn’t have it, they would die,” she stated. “The last three months have been the most heartbreaking time of my life.”
Nelson ended with a positive thought. She said she believes her “girls will defy all the odds.”
What happens next for the family?
The twins are now receiving ongoing care. Treatment for SMA Type 1 is very intensive. It often includes a groundbreaking but expensive gene therapy.
Nelson asked for privacy and support for her family. Fans and fellow celebrities have flooded her posts with loving messages.
We send our best wishes to Ocean Jade and Story Monroe for strength and recovery.